There’s a disease you’ve never heard of. No one has. It’s so rare it doesn’t have a name. Just fourteen people are believed to have ever carried the gene for it. Five of them are in this 1979 picture of my family (that’s me there in the center, in green). The rest can all also be found on my family tree. The disease has killed many of the people I love and now I’ve got it, too. So my family has decided to put an end to it.